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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"

Kindness for Kids Healthcare Award
Deadline: 30 April 2016

"Endowed with 40,000 Euro. The Kindness for Kids Health Care Award is funding projects which aim to help improve the care situation for children with rare diseases sustainably, either through structural changes or new nursing, physiotherapeutic and psychosocial approaches. A scientific study ought to evaluate the concept and be published after project closure."

Care for Rare Foundation Science Award 2016
Deadline: 30 June 2016

"Endowed with 50.000,00 Euro. The Care-for-Rare Science Award, sponsored by the Werner Reichenberger Foundation, should give young scientists the chance to initiate a basic or clinical research project in the field of rare diseases. A rare disease occurs when 5 out of 10.000 human beings are affected.

The science award shall promote creative scientific ideas, contribute to a better understanding of the biological mechanisms leading to rare diseases and to the development of new diagnostic and/or therapeutic strategies. Criteria for the selection of the award winner are scientific excellence, interdisciplinarity and project relevance for clinical-translational research involving the affected patients. The focus is on rare diseases which manifest during childhood.

The Care-for-Rare Foundation supports interdisciplinary and international scientific projects with the goal to elucidate the causes of rare diseases and to develop new innovative therapies for affected children.
The application is open for single persons or groups of scientists with at least one member being affiliated with a research institution located in Germany. Junior researchers are explicitly encouraged to apply.

The complete application documents have to be submitted electronically by June 30, 2016."

Thrasher Research Fund

For children's medical research

No deadline: 2 funding cycles per year
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