European Reference Network On Bone Disorders

BOND, the European Reference Network (ERN) on bone disorders aims to devleop patient-reported outcome and experience measures, in order to create guidelines for a better treatment and management of all rare bone diseases. It will result in the development of new therapeutics and in a faster access of afected patients to new studies. 

By also providing access for physicians to skill development through e-learning (eHealth and telemedicine platforms), along-side working visits, training courses and dissemination activities, BOND will also enable the reduction of diagnosis time, use of fewer innapropriate tests and more accurate diagnosis.

For more information, read the factsheet here.

Citation

Sangiori, L. ERN on Bone Disorders (ERN BOND). 2017  [cited European Commission 30/05/2017].