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Survey about achondroplasia
We have designed a questionnaire with the purpose to better know the population connected to achondroplasia.
The questionnaire is optional and anonymous. The data obtained will be used for statistical purposes and to better understand the natural history of achondroplasia. Please consider answering.
If you would like to take the survey later, you can click on the link at the top "Register at BA"
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European Patient Advocacy Groups (ePAG) Registration Form for Patient Organisations

2016-11-24Global
EURORDIS is calling for patient organizations to join the European Patient Advocacy Groups. Learn more about them and how to apply here.
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Funding opportunities for projects dedicated to children with rare diseases

2016-04-12Global
There are several funds and foundations that fund projects for children with rare diseases. Here is a list of some of them, as well as what their aims are and their deadlines.
Read More
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