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Encuesta sobre la acondroplasia
Hemos diseñado un cuestionario con el objetivo de conocer la población afectada o cercana a la acondroplasia.
El cuestionario es opcional y anónimo. Los datos obtenidos serán usados para cálculos estadísticos y para poder tener una mejor percepción sobre la historia natural de la acondroplasia.
Por favor, considere e intente responder. Si usted desea responder a las preguntas más tarde, puede presionar el botón en la parte superior "Inscribirse en BA"

3rd ICCBH-BOND ERN International Achondroplasia Workshop

2024-05-06Events
An ICCBH 2024 pre-conference workshop will be held on June 22, 2024 (Salzburg, Austria). This event will focus on "Pathologies of the long bones in children with achondroplasia".

Webinar | QED Clinical Development Program Update

2024-09-02Events
ANDO Portugal will be holding a Webinar with QED Therapeutics on 24 September at 6pm (UTC/GMT +1) as part of an innovative series focused on new treatments for skeletal dysplasias.

Workshop: Orthopaedic interventions in achondroplasia | 29 Oct 2024 | 14–17h CET

2024-10-04Events
Registration for the fall EAF (European Achondroplasia Forum) workshop is now open! Dr. Philip Kunkel (President of the EAF) will be joined by a group of experts who will explore orthopaedic interventions in achondroplasia. WORKSHOP Orthopaedic interventions in achondroplasia: Identifying optimal care for improved outcomes Tuesday, October 29, 2024 | 14:00-17:00 (CET) The main topics of this workshop will include the possibility of preventing orthopedic interventions, common problems with […]

Beyond achondroplasia Workshop | 29 April | 17:30–20:30 CET

2025-03-28Events
Registration for the workshop “Beyond Achondroplasia” is now open. The event will be moderated by Dr. Svein Fredwall, from Sunnaas Rehabilitation Hospital (Norway).

ASBMR 2025 Annual Meeting in Seattle | 5-8 September

2025-08-22Events
The ASBMR 2025 Annual Meeting will take place from September 5–8, 2025, at the Seattle Convention Center, in Seattle, Washington, USA.
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